Dear parents, of course, when we are waiting for a baby we hope that he will be born absolutely healthy, but unfortunately it happens that something went wrong. In many countries, childishly with deviations is not a verdict. They have the opportunity to grow, develop and live a practically full life. On our website, we want to help parents who are faced with such a disaster, feel that they are not alone, to gain support, to prompt each other and give advice, maybe someone managed to cope and can share their experience. We are ready to open new categories with more rare diseases specially for you, you just have to click on add more and we will process the information in no time!